HOW TO TAKE ACTION
COS2 Study Sites
HOW TO TAKE ACTION
COS2 Study Sites
Home ❯ Patients/Clinicians ❯ How to Take Action ❯ Clinical Trials ❯ COS2 ❯ Study Sites
The study is being conducted at 16 centers across the USA, Europe, Japan, Korea and Chile.
The study includes up to 200 genetically confirmed dysferlinopathy patients. This includes both ambulant and non-ambulant individuals; as well as individuals who participated in COS, as well as new participants.
For questions on whether you are genetically confirmed or how to get genetically confirmed with dysferlinopathy please contact the Jain Foundation at patients@jain-foundation.org or 425-882-1492.
Institute of Genetic Medicine
Newcastle upon Tyne, UK
Dr. Volker Straub
Heather Hilsden
Email:
Heather.Hilsden@newcastle.ac.uk
Georgina Boyle
Email:
Georgina.Boyle@newcastle.ac.uk
Active – Recruitment closed
Rigshospitalet Neuromuskulær Klinik
Copenhagen, Denmark
Dr. John Vissing
Eva Littrup Andersen
Email:
eva.littrup.andersen.01@regionh.dk
Active – Recruitment closed
Institut de Myologie
Paris, France
Dr. Tanya Stojkovic
Asma Balloumi
Email:
a.balloumi@institut-myologie.org
Tel: +33 1 42 16 58 70
Active – Recruitment closed
Hospital Sant Pau
Barcelona, Spain
Dr. Montse Olive
Nuria Vidal Fernandez
Email: mvidalf@santpau.cat
Tel: +34.93.553.71.15
Active – Recruitment closed
Hospital Universitario,
Virgen del Rocío
Sevilla, Spain
Dr. Carmen Paradas
Beatriz Galán Rodríguez
Email:
nmd.huvr.1@gmail.com
Active – Recruitment closed
Hospital Universitario Donostia
San Sebastian, Spain
Dr. Roberto Fernandez Torron
Ioana Croitoru
Email:
IOANA.CROITORUXX@osakidetza.eus
Tel: 0034943007027
(08.00 am-3 pm, Mon-Fri)
Active – Recruitment closed
University of Padova
Padova, Italy
Dr. Elena Pegoraro
Luca Bello
Email:
luca.bello@unipd.it
Elena Pegoraro
Email:
elena.pegoraro@unipd.it
Active – Recruitment closed
National Center of Neurology and Psychiatry (NCNP)
Tokyo, Japan
Dr. Shin’ichi Takeda
Dr. Madoka Mori-Yoshimura
Makiko Endo
Email:
endo@ncnp.go.jp
Tel: +81-42-341-2712 (ext: 3841)
Active – Recruitment closed
Clínica Dávila
Santiago, Chile
Dr. Jorge Bevilaqua
Daniela Ibáñez Fernández
Email:
dibanez@cinsan.org
Tel: +56 22 730 8151
Active – Recruitment closed
Columbia University Medical Center
New York, NY USA
Dr. Matthew Harms
Helen Mejia Santana
Email:
hm28@cumc.columbia.edu
Active – Recruitment Closed
Nationwide Children’s Hospital
Columbus, OH USA
Dr. Jerry Mendell and Linda Lowes
Kevin Warf
Email:
Kevin.Warf@nationwidechildrens.org
Tel: 614-355-2765
Active – Recruitment Closed
Carolinas Medical Center
Charlotte, NC USA
Dr. Urvi Desai
Alexis Toto
Email:
Alexis.Toto@atriumhealth.org
Active – Recruitment Closed
Washington University
School of Medicine
St. Louis, MO USA
Dr. Alan Pestronk
Oliver Doerr
Email:
oliver.doerr@wustl.edu
Tel: 314-362-1626
Active – Recruitment Closed
Pusan National University Hospital
Busan, South Korea
Dr. Jing-Hong Shin
Ms. Jiyung Jeong (정지영)
jiyoungaci@gmail.com
Active – Recruitment closed
UC Irvine
Orange, CA USA
Dr. Tahseen Mozaffar
Mercedes Herrera
Clinical Research Coordinator
Email:
mercedh1@hs.uci.edu
Active – Recruitment Closed
Stanford Medical Center
Stanford, CA USA
Dr. John Day
Habib Mofakham Fini, MD
Email:
mofakham@stanford.edu
Cell: (650) 223-1254
Active – Recruitment Closed